We just got back from our Pediatric Neurologist appointment with Dylan. We had to drive to Springfield as it's the closest Pediatric Neurologist. Things went well. However, the doctor didn't have our chart. He starts off the appointment by saying, so Dylan had some seizures. Was his birth normal? Really?!?! We had to explain everything. And Craig and I realized how little we know about Neurology. Not surprising. Long story, but the Neurologist who read Dylan's EEGs in the hospital was not the same doctor. They hadn't transferred our records so he had NO idea about what had happened. We tried explaining, but then he'd ask us a question like, "What was his APGAR score?" Okay, from talking to the nurses I knew he had a 1 at birth and a 1 at 5 mins and then a 6. So we tell the doc that and he says, what time was the 6? Again, really?!? I'm suppose to know that off the top of my head. Luckily, one of us wasn't on morphine when all this was happening so Craig was able to remember a little more than me.
The exam went well. He tested his reflexes, checked that his eyes track well, dropped him on the table...yes, he really did. It made me nervous, but he did it to check his startle reflex and it was only an inch or two. Still, makes a mom nervous when you drop her baby onto a table. Anyway, he said his exam looked good. We will go back in a month to have another EEG and see if we can take him off his meds. Long term, he said with issues like his at birth you can see seizures that occur later or possibly impaired learning. Just as the other doctors said, you just watch to see if he hits his milestones like he's suppose to and that he continues to grow normally. Great, as if I needed more pressure on hitting the milestones. The next thing I'll read is some article in Parenting magazine about how you shouldn't worry too much about the milestones because all kids will hit them at different ages. All good news though. Still nothing major to be concerned about.
The latest on not crying. We have learned that he can cry (the instance in the car). However, it still seems he just isn't a big cryer. They drew his blood for newborn screening and he didn't even shed a tear. He has cried a couple more times when he's been ignored for too long or held in an awkward position. But still doesn't wake up crying at night for food or anything. My friend, Amanda, has said her boys were like this too, so I'm trying to just chalk it up to normal baby stuff and thank God he's not colicky or anything. It is nice to not have a real cryer, now that I can relax that he's otherwise healthy. And this go around, I'm letting him sleep as long as he wants to...none of that waking a baby to eat at night stuff. He's gaining weight just fine (10lbs, 8oz yesterday), so he's clearly making up for it during the day. He seems to sleep from about 11-4 or 5 some nights. Pretty good for a 1 month old.
So that's the latest on Dylan. I'll post some more pics and will write a little on the Pumpkin Patch trip this weekend with my parents. Fun times. :)
2 comments:
Oh, yay!!! I'm so glad to hear that he is doing so well!!! And you, you lucky dog, with the sleeping and such. Five hours is a "full night's sleep" in our book, and we didn't get that until at LEAST six weeks. If then!!!
I love that you have a tough baby... Pumpkinhead didn't cry much either. He COULDN'T produce tears until he was about a year old (blocked tear ducts, or some such), but now he can produce them for just hurt feelings. Sigh...
Can't wait for the pictures!
Such great news! I've been stalking you for a while for updates - so thank you! So so happy to hear Dylan is doing well - what a blessing!
Definitely enjoy the no crying thing! Our middle was our angel baby and I'll tell you from our experience - lighting doesn't strike twice. (No matter what Mandi says!)
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